- Tiana Death, 24, was a talented track hurdler
- Diagnosed with autoimmune encephalitis
- Now on steroids, also regular plasma treatments
A track athlete who previously represented Australia at the Commonwealth Youth Games has urged people to ‘live each day like it is your last’ after being diagnosed with autoimmune encephalitis.
In 2023, Tiana Death from Queenscliff on Sydney’s northern beaches, began experiencing flu-like symptoms, constant fatigue as well as terrible headaches.
One morning she was found at home unconscious, after suffering a seizure during the night.
She was rushed to hospital, and couldn’t walk or talk as her body began to shut down.
Doctors frantically performed anti-seizure medications and lumbar punctures in a bid to resolve Tiana’s health, but were left searching for answers.
Eventually the talented junior hurdler, 24, was diagnosed with epilepsy, which forced her to again learn how to talk, write and walk.
An athlete who previously represented Australia at the Commonwealth Youth Games has urged people to ‘live each day like it is your last’ after being diagnosed with autoimmune encephalitis
In 2023, Tiana Death from Queenscliff on Sydney’s northern beaches, began experiencing flu-like symptoms, fatigue as well as terrible headaches (pictured, in hospital)
Tiana recently documented her brave journey in a lengthy Instagram post – she also is on six different anti-seizure drugs
A few weeks ago doctors finally confirmed Tiana has autoimmune encephalitis, a condition which sees the immune system mistakenly attack the brain.
Inflammation often follows, and in Tiana’s case, constant seizures.
While remaining upbeat, Tiana is on a high-dose of steroids, and receives monthly plasma treatments to suppress her immune system.
‘This will likely be a lifelong journey,’ she said in a lengthy Instagram post earlier this month.
‘It’s a hard card to be dealt, and it’s taken a toll on every part of my life.
‘It is a cliché, but it’s true. Live each day like it’s your last. You really don’t know what’s around the corner.’
Tiana’s mother Kylie said it has been heartbreaking to watch her daughter struggle.
‘She’s on six different anti-seizure drugs, but still having seizures which basically means she’s drug resistant,’ she said. ‘Tragically, it is her life now.
‘She is so resilient and she’s truly my hero.’
A GoFundMe page has been created to assist the Death family with medical costs.
And sadly, it is also unlikely Tiana will be able to have children in the future due to her high level of medication.
