Lyme disease is something you might have been warned about when running through the woods as a child as it’s often associated with walking or hiking.
Justin Timberlake has come out as the latest high profile sufferers, joining Shania Twain, Avril Lavigne, Justin Bieber and Alec Baldwin who have all spoken out about the condition. Many of those celebrities are helping raise awareness around the condition, though there’s still a lot of confusion around symptoms and how it can be contracted.
In sharing his diagnosis, Timberlake described the disease as “relentlessly debilitating, both mentally and physically.”
“I’d like to do my part to help others experiencing this disease,” he continued.
Here’s everything you need to know about Lyme disease.
What is Lyme disease?
“Lyme disease is an infection caused by a group of bacteria transmitted through an infected tick, giving you a specific set of symptoms,” says Dr Sanjay Mehta, GP at the London General Practice.
It’s not a very common disease – the National Institute for Health and Care Excellence (NICE) suggests there are around 1,000 confirmed cases in England and Wales a year, but the real number could be higher. Mehta says you can’t catch it from any tick, only infected ones.
The disease can also be seasonal – “It doesn’t die down to zero, but it drops significantly during summer and winter, and peaks during early autumn and spring,” says Mehta – and is actually named after a town. It was first discovered in Lyme, Connecticut, after an outbreak of patients with joint problems, rashes and fatigue in the 1970s.
What are the symptoms?
Lyme disease can manifest in a variety of different ways – from being asymptomatic, to nerve damage in more severe cases.
“There are two main groups of patients,” says Mehta. “First, there’s the group who catch it early, and they don’t really get any symptoms – they just see they’ve been infected by a tick.
“Then there’s the second group of people who don’t get treatment, and although only a very small percentage of them actually end up with symptoms, they are the ones we worry about.
“Those patients tend to get three stages of symptoms. First, they might get flu-like symptoms kicking in a week or so after the bite, and a characteristic rash. Second, some might then get symptoms related to their nerves, their heart and their brain, several weeks or months later.
“An even smaller number of people might then get the third stage, and these are the symptoms people typically associate with Lyme disease – long-term joint problems and neurological symptoms.”
How do you contract Lyme’s disease?
As Lyme disease is passed on exclusively via infected ticks, you can downgrade the disease from unlikely to highly unlikely by avoiding tick-heavy areas or taking precautions within them.
“There are areas of the UK known to harbour infected ticks, like the Lake District, the New Forest, the North York Moors, and the Scottish Highlands,” says Mehta. “If you see ticks on your skin, you don’t necessarily get transmission for up to four hours, so if you can remove them that’s ideal.”
If you are going to any of these areas, there are also a few simple things you can do to limit the risk. “Try to keep to paths in grassy, wooded areas, and keep away from long grass and vegetation,” advises Mehta. “It sounds obvious but shower on your return – often ticks fall off – and check yourself for them too. Wear insect repellent, long t-shirts, and long trousers if possible.”
What should you do?
The simple answer is: If you’ve gone to a high-risk area and you know you’ve been bitten by something, see a doctor.
“It is worth going on to treatment, which is a course of specific antibiotics,” says Mehta. “We do run tests, and the tests are fairly reliable, but the main things are a) have you gone to a risky area? b) have you seen you’ve been bitten? And c) have you developed symptoms?”
“The take-home message is to seek medical help if there is a bite, but be aware it’s only a small percentage of people who end up with problems.”
